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Who we are

 

Who are we

The Foundation is a non profit Public Benevolent Institution (PBI), a status originally granted by the Australian Tax Office (ATO) and now the 'Australian Charities & Not-For-Profits Commission' (ACNC).  For reporting reasons and to save confusion between similar sounding names all Australian charities are required to have an individual ABN, ours is 99 095 779 114.  PBI's that once reported to ASIC are now required to report annually to ACNC.  Our charitable status can be checked online:

http://www.acnc.gov.au/RN52B75Q?ID=8F26B3BA-584B-4866-BD3F-7FC6B9E9774A&noleft=1 Or as a PDF: Open PDF

Charitable status of all Australian charities can be checked at: 

https://www.acnc.gov.au/ACNC/FindCharity/Search_the_ACNC_Register/ACNC/OnlineProcessors/Online_register/Search_the_register.aspx

As a children's cancer foundation we don’t door-knock.  We are not & have never used ‘Appco’ or any of Appco’s associated companies as commercial traders on our behalf, and we never will. 

When you call our 1800 255 522 free call number, you speak directly with us and your donation goes directly to our Gift Account and remains untouched without any management fees and is passed on 100% to struggling families of kids with cancer all over Australia. 

The only way to ensure your entire donation is passed on to help the youngest of cancer sufferers is to call us directly.  No other children’s cancer foundation can make such a claim.

Australian charities do not have a Charity Number, but in order to hold charitable status and to provide a tax deductible receipt for donations must be registered with the ACNC.  If any organisation is not listed it is not a charity.

When you make a donation to any charity there is always a real concern:

"how much of my dollar gets through to the cause". 

We use all our donations 100% for family assistance, and the cancer wards in children's hospitals with no management fees whatsoever taken from the donations made directly to us and held in our donation Gift Account.  All management costs/Administration etc. come from the lotteries that have been running continuously since 1999, so our donations and funds received from fundraising events are able to remain untouched.  Usually the support we give to hospitals, clinicians and the research that we have funded since 1999 comes from our lotteries.   

We are not associated with 'Appco Marketing', nor its suppliers/subsidiaries and never have been, never will be. 

 

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Sydney Ball Details

Castle Hill RSL, 77 Castle Street, Castle Hill 2154, 26th October 6.30pm – 12.00am

Tickets will go on Sale Monday 14th May 2018, $150.00 (includes 3 course meal, beer, wine and soft drinks) Tables will seat 10 so get a table together with friends or family, our aim is to Scare Cancer away from our kids.

Come dressed in your scariest Halloween costumes there will be Lots of Entertainment on the Night & lots of wonderful items to be auctioned & it's all for the kids.  All the profits from the night will go to the kids as no Admin fees come from our donation account.

To register your interest call 1800 255522 or email: This email address is being protected from spambots. You need JavaScript enabled to view it.This email address is being protected from spambots. You need JavaScript enabled to view it.">

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Dr Geoff McCowage is a Neuro Oncologist at The Children's Hospital at Westmead in Sydney.

Kids with Cancer first started funding Dr Geoff's research way back in 1999 (our second year in operation). We provided funds then to employ a Research Assistant (Gene Therapy) $63,000.00, Research Assistant (Unit D52 Gene Clinical) $37,500.00 and over $50,000 for project and laboratory consumables as well as work station and software. These early payments allowed Westmead to initiate the commencement of the trial.

 

That early support in 1999 has moved on to become: The Gene Therapy Research Unit, which is now a joint initiative of the The Children's Hospital at Westmead and Children's Medical Research Institute, and was established in recognition of this potential and the need for a research environment that combines both basic science and clinical excellence. We are pleased we were able to support Dr Geoff at the beginning of this wonderful research initiative. 

Geoffrey-mccowageThe Children’s Cancer Gene Therapy Team was honoured with the Excellence in Translational Cancer Research Award, sponsored by Sirtex, at the 2015 Premier's Awards for Outstanding Cancer Research.

 

"Gene Therapy provides hope as a viable and innovative approach to the treatment of paediatric brain tumours and alleviation of treatment side effects".

 

Dr Geoff has many pod casts for parents that explain the cancers that affect our kids and the treatment, we recommend them to all parents: https://soundcloud.com/drgeoff

 

 

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Four year old little Jax was diagnosed with Acute lymphoblastic leukaemia (ALL) Jax is a shy little boy when you first meet him, but once he gets to know you, he is very cheeky with a smile that is extremely contagious. Jax loves playing with his iPad and LOVES the Avengers! Us too Jax... especially Ironman! He also loves Batman, Superman, Transformers and Disney's Cars.

He loves playing ball outside and also playing with playdough. Jax has a teddy blanket that he just won't go anywhere without. Some days his mum has to search high and low to find it so he can go to sleep! Teddy has been good for him while being on his treatment.
Jax lives with his parents and his little brother and cousin. He gets into a lot of mischief playing with them.

We here at Kids With Cancer send all our best wishes to little Jax and his family. The financial help the family has been able to access so far from us, comes from our supporter's direct donations.

In the 2016/17 Financial Year we had processed 604 family requests, which was up 100 from the previous year, 157 requests were from new referrals from 10 different children's hospitals.  We paid directly to families $400,000 for everything from groceries to funeral expenses. 

To help other families like Jaxs' donate at: https://www.kidswithcancer.org.au/paypal.html

To support our major fundraiser, our $80,000 Winner's Choice Lottery: Free Call 1800 255522  

or download an order form 


We want our supporters to know that we are a stand-alone Public Benevolent Institution, we are totally independent from all other charities.  

We are not associated with the 'Oncology Children's Foundation' now trading as 'Kids Cancer Project' in any way, even though the names are similar (& there's often confusion).  

The story in Sydney's Sunday Telegraph 7/2/2016 where the past CEO of the 'Kids Cancer Project' admitted to three counts of fraud has no association with us as, 'Kids with Cancer Foundation Australia'. The statement made by the current CEO saying "it was a warning to all other charities", was over the top, unnecessary, and an attempt to tar all decent charities (with proper Governance) with the same brush when it was their own CEO that was sentenced to prison after having 5 years to repay what was stolen over a two and a half year period as CEO.


We have never used backpacker 'Chuggers' in the street or shopping centres with iPads that hide the true percentage of your donation & we warn against donating in that way. 

We use 100% of the direct donations that we receive from the public to help the kids, their families and the children's hospitals where they are treated. 

Every charity has costs, telephone, electricity, post, printing, salaries etc. but none of our costs come from our direct donations. We have never paid any marketing company from our donation/Gift account.

We will and do use 100% of every dollar in our Gift Account to benefit the kids, no salaries or expenses come from our Gift Account.

In this financial year alone over $400,000 has been provided as direct financial assistance to struggling families of the youngest of children suffering with childhood cancer, for all things from grocery vouchers to funeral assistance.

The major fundraising that 'we' do comes from our own efforts. The lotteries/art unions that we run in shopping centres selling our $2 tickets are run in-house and we work hard on these 7 days a week & have done so continually (without a days break, apart from Christmas Day) for 19 years.

Purchasing lottery tickets from a charity is not seen by the ATO as a donation (as you receive something in return) so we keep our lottery sales separate from the donations that we receive & that way we can pass on all the funds that we receive in our donation'Gift' account to benefit the kids.


Throughout Australiaover 900 children and adolescents are diagnosed with cancer each year. Their survival rate has increased significantlover thpast 20 years, and when all cancer types are considered, the survival rate 5 years after diagnosis is 81% for this population group. The improved survival rates, which have occurred despite stable cancer incidence rates, are due to medical and technological advances.

As the Naming Rights sponsor of The Kids Cancer Centre's 'Kids Cancer Research Centre' and the 'Behavioural Sciences Unit' at Sydney Children's Hospital and the Founding Patron of the 'Children's Cancer Centre' at Monash Children's which forms part of the Victorian Government's Paediatric Intergrated Cancer Services, our supporters can be assured their donations will go a long way to help us find a cure for childhood cancers, and in the short term a better way for us to treat children suffering now with childhood cancers. 

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We are proud to be the largest ever donor to Sydney Children's Hospital.  

The Kids Cancer Centre at Sydney Children's has benefited from the $8.3million that has been donated to them from Kids with Cancer Foundation.  In 2014 we made the final $600,000 payment during the Gold Telethon for the new Kids Cancer Centre Research Unit, bringing our total to $1.53million over the five telethons as well as our normal $1.65million donated to Sydney Children's Hospital and our $1.4million to The Children's Hospital at Westmead over the same five year period.  These two hospitals alone received $4.5million over this period with a further $1,000,000 in 2014.

 

We are a 'Founder' of The Children's Hospital at Westmead and by providing the total funding to build and fit-out theChildren's Cancer Centre at Monash Children's Hospital we became the 'Founding Patron' of the Children's Cancer Centre at Victoria's Monash Children's.

 

When you make a donation to any charity there is always a concern:

"how much of my dollar gets through to the cause".  

 

We use all our donations 100% for family assistance and the cancer wards in children's hospitals with no management fees whatsoever taken from donations made directly to us and held in our donation Gift Account.  All management costs come from the lotteries that we run throughout the year, so our donations remain untouched.

In the month of March (2016) we have assisted families of kids with cancer to pay the household bills thay can't afford to pay, because their child is undergoing cancer treatment, sadly two of those payments were for funerals and we have one more funeral request on our desk today (our 15th since June 2015).

In those 30 days of March we have paid over $32,000 to families, everything from grocery vouchers to rent & mortgage payments. A small thing was tickets to the Zoo for a family ...for a little respite away from the hospital.

As a small charity we get the most satisfaction helping families directly, please help us to continue what we do in your name. Donate & 100% will get to the kids or their families, we take no management fees from your donations.


Finding a cure for childhood cancer is of the utmost importance and to this end we have been involved in funding research into childhood cancer since 1999 however we also appreceiate that the kids suffering now from this dreadful disease have a vital need to be as comfortable & pain free as they can while they are in one of our cancer wards undergoing treatment.  We always ask that any request for funding comes from the senior oncologist in our children's hospitals and in this way we know we are providing funds to the most important areas.

 

The other side of the funds that we provide go to relieve the financial burden placed on parents of children with cancer.  Imagine giving up your job and moving to a city hospital to be at your baby's or young child's side as they undergo treatment, sometimes for months on end.  How do you pay your mortgage, rent, electricity or any other household bill?  We do more for direct family financial assistance for children under the age of 13 than others due to the fact that (unlike other children's cancer charities) we don't have a dollar limit per family per year.

 

We pay family electricity, gas, water, phone, Rates, rents, mortgages, accommodation, school fees & tuition, home insurance.  We assist families to get their kids to hospital for treatment, we put tyres on cars, pay for mechanical repairs, pay car regos & insurance, we have purchased 8 second hand cars for families in country areas to get their kids to city hospitals. In the past 3 years our total to families alone is almost $1million.

 

We have helped families with purchases for kids beds & bedding, fridges, freezers, heaters, washing machines & dryers & other furniture items including single room air conditioners for a child who has returned home after bone marrow transplant & needs to remain inside.  We have paid airfares to fly in grandparents & other family members for single mums who need the extra help when one child is in hospital & siblings need to get to school.

 

We have provided grocery vouchers and vouchers for clothes and toys at Christmas time.

We assist families all over Australia to pay their funeral fees when they lose a child to cancer & can't afford the funeral expenses.  In the 2012-13 financial year we assisted 22 families with funeral expenses for the youngest of children as part of the $280,000 that we paid to cancer families.  Unlike others we don't discriminate on location when a child dies, and we will share costs with other charities in order to have the total outstanding payments made. 

 

Donate directly now and 100% of your donation will be passed to families & children's hospital's cancer wards. 

Free Call 1800 255 522

 

 


 As a cancer foundation Kids with Cancer Foundation (Australia) Limited, is a PBI an incorporated public company limited by guarantee, a non-profit charitable entity.

The ATO describes a Public Benevolent Institution as follows:

  • A Public Benevolent Institution is an institution established and carried on for the relief of poverty, sickness, suffering, distress, misfortune, destitution or helplessness, and

  • A Public Benevolent Institution makes its services available without discrimination to every member of the public which the organisation aims to benefit, and

  • A Public Benevolent Institution is administered for the public good without purpose of private gain, and

  • A Public Benevolent Institution provides direct relief for the benefit of a disadvantaged section of the public

Kids with Cancer Foundation received Australian Tax Office 'Deductible Gift Recipient' status (DGR) from the beginning and all donations over $2 are tax deductible.  The Foundation as a Public Benevolent Institution is also endorsed by the ATO as an income exempt charitable organisation. 

We are a small independent children's charity/cancer foundation.  We have no affiliation with any single children's hospital quite the reverse, as we have donated to eight separate hospitals so far and are keen to challenge ourselves to do much more for kids with a brain tumor, leukemia and all other cancers.  We receive no Government assistance and have no corporate sponsors, the funds we raise come from our own efforts.  We raise the majority of our funds, by conducting continuous, successful lotteries (art unions/ raffles) 7 days a week all year round. We have marketed our $2 tickets through shopping centres in NSW, the ACT and  in Victoria, and it's the profits from these lotteries that we are able to pass on to benefit the children. 

  

 


 As a children's cancer foundation we have been granted 'Founder' status of 'The Children's Hospital at Westmead'.  'We are an original Inductee into Sydney Children's Hospital's 'Hall of Champions (their highest level of supporters) and at Monash Children's Hospital in Victoria we are the 'Founding Patron' of the 'Children's Cancer Centre', which was built and fitted out entirely with our donation to Monash Children's (Southern Health) of $1.157million and forms part of the Victorian Government's Paediatric Integrated Cancer Service (PICS)

Other hospitals to receive our funding:

  • Over $1.8million to Adelaide Women's and Children's Hospital.

  • John Hunter Hospital, Newcastle.

  • The Royal Children's Hospital Brisbane.

  • The Mater Children's Hospital Brisbane.

  • Alice Springs Hospital.

Hospitals where we have helped families with financial assistance:

  • Royal Children's Hospital Melbourne

  • Canberra Hospital

  • Princess Margaret Hospital for Children, Perth.

 

Kids with Cancer Foundation commenced in December 1997  with the aim to provide funding for: childhood cancer sufferers, their families and other institutions that assist children with cancer. 
 

Over the nineteen years, we have provided over $22.4 million to 10 Australian children's hospitals and families to date (February 2018)

Through the social workers in our children's hospitals we provide financial assistance to the families of children with brain tumors, leukemia and all childhood cancers.  We have in the past paid for small things like car repairs and rental accommodation for country based families and larger amounts such as, funeral expenses for families who have lost a child to cancer.  Through the requests of paediatric oncologists in these hospitals we provide assistance directly to the hospitals, improving the care of young cancer sufferers. 

Donations and Bequests that go into our Gift Account are separate and once received (unlike most charities) have no management fees deducted. Funds from our Gift Account are able to be passed on 100% to family assistance.  Canteen, Starlight, Camp Quality & Make A Wish Foundation all do great work but we are different and independant from all others. 

All our running expenses such as prizes, rents, wages, etc. are borne by the lotteries.  Many families who have a child with cancer will need to up-root the family and move to the city to be close to the hospital that is caring for the child.  Sometimes one or both parents may need to give up their job temporarily to be at their child's side during treatment.  The strain on a family member needing to go to work every day knowing their child is in a cancer ward is sometimes overwhelming. 

On average a family is personally $20,000 out of pocket due to their child falling ill with leukemia or other cancers and the only way the family unit can remain together is through financial assistance.  As we are Kids with Cancer Foundation we only care for the littlest of children from new born babies to pre teens, we leave the adult and teenage care up to the many wonderful adult cancer charities.  When you make a donation to Kids with Cancer Foundation if you want you can select where you would like your donation to go:

  • Family assistance, payment of bills etc.

  • A child's funeral

  • A children's hospital's oncology ward in your area

 

 

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