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Sydney Children's Hospital, Data Manager

The Clinical Research Associate / Data Manager is responsible for accurate collection, maintenance, validation and analysis of data relating to children treated for cancer and blood disorders. This position is also responsible for ensuring that appropriate processes are in place for studies to be opened, and children enrolled.

It is demonstrated that children who are treated on clinical trials have better outcomes than those who are not. In response to this, the majority of children treated by the CCC&BD are enrolled on clinical trials if one is available. It is vital that data be collected from patient records and sent to the managing centre so that information can be aggregated and the impact of treatment evaluated.

The role of the data manager is to forward samples to the centre coordinating the trial, to ensure monitoring tests and scans are completed as per the treatment schedule and forward copies to study coordinator, and most importantly to extract this information about treatment, delays and any complications or side effects from all relevant sources, including external treating facilities. Another important role is compiling protocols for ethics submissions to ensure that all studies are appropriate to enrol children onto, and are not placing children at risk.

There has been a significant increase in workload for the data managers over the past 2 years. It was recognised by the department, that in order to maintain the high standards and quality of data of previous years, further staff was required, and we thank Kids with Cancer Foundation for providing that funding required for the additional position.

We urge you to consider the children in a hospital near you.  Please donate, post cheques to: Kids with Cancer Foundation, PO Box 135 Westmead NSW 2145 or for credit cards: free-call any donations to 1800 255522, and we guarantee that 100% of these donations will be passed to families, or use this Donate now button or at the top of the page.

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